Charity Calls for Help to Direct Future Tinnitus Research
|Author: JennyPearce||Published: 21st December 2011 16:13|
The British Tinnitus Association (BTA), in partnership with the National Institute of Health Research (NIHR) National Biomedical Research Unit in Hearing (NBRUH), is leading on a project to identify what the important research questions about tinnitus are. Following an initial briefing meeting for the James Lind Alliance Tinnitus Priority Setting Partnership (PSP), held in London earlier this month, the BTA is now calling on clinicians and members of the public who experience tinnitus, or those with an interest in tinnitus, to get involved.
The charity needs as many people as possible to take part in the survey, where their questions about tinnitus treatments can be shared. The survey can be completed either online at www.surveymonkey.com/s/JLAtinnitus or via a downloadable version which can be found at www.tinnitus.org.uk/jla-tinnitus-survey.
The Tinnitus PSP aims to allow patients and clinicians to have an input in research priorities and uncertainties in the treatment of tinnitus. Questions submitted by patients and clinicians, via the survey, will help to direct future tinnitus research as they will be considered and prioritised. In the future, research/reviews can then be targeted at what is considered to be deemed the highest priority.
The project is being overseen by a Steering Group, which is being led by an independent chair from the James Lind Alliance (JLA), and will run for one year. The initial Briefing Meeting, held on 7 December, was attended by representatives of charities, companies, hospitals and services, all with an interest in tinnitus, as well as many tinnitus patients. The findings of the JLA Tinnitus Priority Setting Partnership will be released in September 2012.
For more information about the Tinnitus Priority Setting Partnership visit http://www.tinnitus.org.uk/JLA.
Not an illness or disease, tinnitus is a term that describes the sensation of hearing a noise in the absence of an external sound. The noise can have virtually any quality. Ringing, whistling, and buzzing are common, but more complex sounds may also be reported. Troublesome tinnitus can be very distressing for the affected individual, and issues may arise with sleep, concentration and mood. However, in many cases, subtle changes in people's environment can address these issues, and improve quality of life.
The BTA is an independent charity which supports thousands of people who experience tinnitus and advises medical professionals from across the world.
The British Tinnitus Association strives to be the primary source of support and information for people with tinnitus in the UK, thereby facilitating an improved quality of life. It aims to encourage prevention through its educational programme and to seek a cure for permanent head noise through a medical research programme.
The experienced team at the BTA understands the impact that tinnitus can have on the lives of those who experience tinnitus and those who live with them, so seeks to provides the most appropriate and expert advice and information free of charge - via a confidential freephone helpline on 0800 018 0527 and online at www.tinnitus.org.uk. The BTA can also post printed and audio information and advice.
Visit the BTA's Facebook page at www.facebook.com/BritishTinnitusAssociation and follow the BTA on Twitter at www.twitter.com/BritishTinnitus
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